The Year Long Battle with Major Neurological Symptoms...
I am not one to write on these types of blogs... however, at this time in my life, if I can help even one person, then it is worth it.
My 12 year old daughter started having severe neurological symptoms. Seizure like activity, along with headaches, muscle aches and fatigue. At times, she would become so fatigued that she could not move or speak.
The doctors kept telling us she was having a psychological problem. Too much pressure at school, problems with friends, etc. The one thing that they would not listen to, was that none of that pertained to her! She was an A student, had many friends, and would always come home and talk about the good and bad of her day.
After 9 months, she continued to complain of muscle aches, fatigue, and headaches. As for myself, I have had years of feeling fatigue, migraines, muscle and joint aches.
A year ago, I was having horrible abdominal distention, gas, belching, and felt nauseous. After arguing with my doctor, he agreed to do a HIDA scan, and it revealed a non functioning gallbladder. I had it removed in December.
Over the course of the last year, I gained 40 pounds, had increased fatigue, increased migraines, and increased irritability. Again, I was told it was all stress.
In October I decided to get a flu shot, (which I had not had in many years). Just 48 hours after my shot, I became incredibly light sensitive, with severe continuous headache, dizziness, and stumbled a lot! I was dropping things, and having chest discomfort. My blood pressure became unstable.
At first I thought it was a reaction to the flu vaccine. However, after 4-5 weeks, the symptoms still persisted. At one point, I became so weak that I could not move or talk.... just like my daughter. I stumbled upon the gluten problem only by accident.
I had not eaten much for a couple of days, and was feeling a little better. Then, I had pizza at work, a sandwich with bread for a snack, and then the following morning, I had a doughnut with my boys. Then it hit me... I began feeling nerve tingling, bad headache, and weakness.
That day, I decided no more gluten... My symptoms improved after just 4 days off of gluten. I met with a GI doctor, and had an Upper Endoscopy to check for Celiac Disease, but the test was negative. So, I just have gluten sensitivity without Celiac!!
I Hope this helps others to recognize what might be their own, similar symptoms of gluten sensitivity.